Four years ago, my life took a drastic turn. I could not have recovered without the help of all of you. There’s an enormous amount to be said for the excellent care that I was given in the acute stages and the therapy that I worked tirelessly at in the postacute, but it was the support that I received from you all that was the game changer. And you all know who you are.
On May 8th, 2015, the four year anniversary of my TBI, I took 2 final exams and tied up as many loose ends as I could think of before flying into NYC to celebrate this day. Yes, celebrate! The significance of this anniversary is to pay heed to everyone who made my life possible.
My flight arrived at 6:30pm, and I made my way to the rooftop where I fell four years prior. Many friends joined me with cheap Brooklyn bodega candles and a somber, yet loving, demeanor. Words did not need to be spoken… they were implied. The love that I have for everyone who made it is immeasurable, and I am so thankful! There’s a whole lot of love here.
From last year’s post: “I am eternally grateful for the incredible support of all of the doctors, nurses, counselors, friends, family and to everyone of my readers… I am humbled and grateful to be able to celebrate the new heights that I am now climbing. Let’s raise our cups… Here’s to next year. Cheers!”
The 4th anniversary of my husband’s severe TBI is approaching this year.
He was thrown out of the car as the front tyre burst.
As it happened on a public holiday plus deep in the jungle, it required 26 hours before he was airlifted to Singapore from Indonesia.
He was in induced comma for almost 2 months due to the severity of his injury.
This happened in 19 August 2012, and now he is 48 years old.
Last year MRI showed that his right brain is 70% dead, but we are grateful that he still able to have control of his right hand (so he can eat by himself) and still bilingual (still can converse, read and pray using both languages), but motoric capacity is very limited, not able to sit, stand nor turn at all.
Now contractures /spasm of his left limbs are getting more serious and causing him pain.
Please if you have any contacts on this matter, we would appreciate it, so we can get second opinions on it. We did botox shots 3 years ago, but repeats are not advisable for him.
We considered implant, baclofen, it is not suitable for him too, for the medication is not available in our country and missed timing can cause fatality.
Selective dorsal rhizotomy also looked at, but not ok as my husband cognitive capacity is not up to the standard where his response could be reliable as doctors’ feedback when doing the surgery for him.
The pain as a caregiver for me is more on watching my husband suffer and invalid , so i really hope to do whatever possible to find solutions for his state.
Stumbling into your info made hope resurface again, for not many understand our pain and share our burdens.
It sounds like he is wrestling mostly with some motor control problems. Where are you currently living? Indonesia? If you’d like to have a conversation over skype or the phone, send me a message through the contact form, and we will make something happen. Cheers!